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Clinical resources on women and girls' bleeding and clotting disorders

Curated clinical resources on bleeding and clotting disorders in women and girls, reviewed by the ISTH Global Public Affairs Committee. Find evidence-based guidelines, tools and expert guidance on von Willebrand disease, venous thromboembolism, heavy menstrual bleeding, thrombophilia and more. Organized by topic to support diagnosis, treatment and HCP education.

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ISTH Pulse Podcast: Dr. Angela Weyand Talks Women's Health and Becoming Social Media's "Shematologist"

ISTH Pulse Podcast

An ISTH Pulse Podcast episode with pediatric hematologist Angela Weyand on raising awareness of bleeding disorders in women and girls and using social media as the "Shematologist" to share accurate, accessible health information.

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ISTH SSC Subcommittee on Women's Health: Current Projects

ISTH SSC Subcommittee on Women's Health

An overview of current research projects led by the ISTH Scientific and Standardization Committee Subcommittee on Women's Health, with links to active studies on bleeding, thrombosis and hemostasis across every stage of a woman's life.

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Educational Posters on Women's Health (Spanish)

Provided by Soledad Molnar

A set of Spanish-language educational posters on bleeding and blood clots in women, designed to help patients and health care providers in Spanish-speaking communities recognize symptoms, understand risk and seek timely care.

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ISTH Pulse Podcast: Navigating VTE Risks: A Women's Health Perspective With Expert Beverley Hunt

ISTH Pulse Podcast

An ISTH Pulse Podcast episode in which hematologist Beverley Hunt explains how venous thromboembolism risk affects women at different life stages and what patients and clinicians should know about prevention and early recognition.

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ISTH Pulse Podcast: Pregnancy, Post-Menopause and Poverty: The Lancet Haematology Commission on Global Female Health and Haematology

ISTH Pulse Podcast

An ISTH Pulse Podcast episode on The Lancet Haematology Commission on Global Female Health and Haematology, exploring how pregnancy, menopause and poverty shape access to bleeding and thrombosis care for women worldwide.

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ISTH Pulse Podcast: The Untold Story of Women and Hemophilia

ISTH Pulse Podcast

An ISTH Pulse Podcast episode exploring the overlooked experiences of women and girls with hemophilia, including delayed diagnosis, bleeding symptoms and the barriers they face in getting recognition and equitable care.

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ISTH Pulse Podcast: Dr. Angela Weyand Talks Women's Health and Becoming Social Media's "Shematologist"

ISTH Pulse Podcast

An ISTH Pulse Podcast episode with pediatric hematologist Angela Weyand on raising awareness of bleeding disorders in women and girls and using social media as the "Shematologist" to share accurate, accessible health information.

Explore the resource

Infographic: Improving the Care of Women With Haematological Disease Is Possible

The Lancet Haematology

A Lancet infographic highlighting gaps in care for women with bleeding and clotting disorders and outlining practical steps to improve diagnosis, treatment and outcomes for women with blood diseases around the world.

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Female reproductive health: what the classical haematologist needs to know

The Lancet Haematology

A Lancet Haematology article outlining the key aspects of female reproductive health, from menstruation to pregnancy and menopause, that hematologists need to understand to deliver better care for women with blood disorders.

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ISTH Pulse Podcast: The GLP-1 Question: What About Blood Clots?

ISTH Pulse Podcast

An ISTH Pulse Podcast episode examining whether GLP-1 receptor agonists, widely used for diabetes and weight loss, affect blood clot risk and what the current evidence means for patients and prescribers.

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Contemporary menopausal hormone therapy and thrombotic disease: nationwide nested case-control study

The BMJ

A BMJ nationwide nested case-control study examining the link between contemporary menopausal hormone therapy and thrombotic disease, comparing blood clot risk across hormone therapy types and routes of administration.

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Grupo CAHT Recommendations on Thrombophilia Testing, Anticoagulation and Contraception in Women of Reproductive Age

Grupo CAHT

Spanish-language recommendations from Grupo CAHT on hemostasis in women, covering thrombophilia testing, anticoagulation in women of reproductive age and thrombosis risk associated with newer contraceptives.

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New approaches in the haemostatic management of postpartum haemorrhage

BMJ Medicine

A BMJ Medicine review of emerging approaches to the hemostatic management of postpartum hemorrhage, summarizing the latest evidence on treatments that reduce bleeding and improve outcomes for mothers after childbirth.

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NHS England Maternal Care Bundle: Venous Thromboembolism

NHS England

NHS England guidance for maternity services on reducing avoidable harm, including the maternal care bundle element on venous thromboembolism risk assessment and prevention during pregnancy and after birth.

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Menopause and Clots: Patient Leaflet (Thrombosis UK)

Thrombosis UK

A Thrombosis UK patient leaflet explaining how menopause and hormone replacement therapy can affect blood clot risk, with guidance on symptoms to watch for and steps women can take to lower their risk.

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Pregnancy Thromboprophylaxis Survey: ISTH SSC Subcommittee on Women's Health

ISTH SSC Subcommittee on Women's Health

A survey from the ISTH SSC Subcommittee on Women's Health gathering clinician input on current practices for preventing blood clots in pregnancy and after delivery to help inform future research and guidance.

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Thrombosis UK Pregnancy and Thrombosis Hub

Thrombosis UK

An online hub from Thrombosis UK with trusted information on blood clot risk during pregnancy and after birth, including warning signs, prevention and support for women and families.

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U.K. National Early Pregnancy VTE Risk Assessment Tool

Thrombosis UK

A downloadable questionnaire from Thrombosis UK that helps women and clinicians assess venous thromboembolism risk in early pregnancy so prevention can be planned when it is needed.

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NHS England Maternal Care Bundle: Venous Thromboembolism

NHS England

NHS England guidance for maternity services on reducing avoidable harm, including the maternal care bundle element on venous thromboembolism risk assessment and prevention during pregnancy and after birth.

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Simple guide to haemophilia testing in women and girls

Haemophilia Foundation Australia

Accessible patient-facing guide covering genetic and factor level testing for haemophilia in females, including infographics, personal stories and answers to common questions.

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Bleeding disorders and abnormal bleeding toolkit

Haemophilia Foundation Australia

Practical resource helping women with bleeding disorders navigate disclosure conversations with family, partners, employers and healthcare providers, including guidance on privacy rights.

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Bleeding disorders and abnormal bleeding teaching toolkit

Let's Talk Period

A patient and provider education toolkit from Let's Talk Period designed to support conversations about bleeding disorders and abnormal uterine bleeding in clinical and community settings.

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Let's Talk Girls Affected by Hemophilia

Let's Talk Period

Patient-centered infographic on heavy menstrual bleeding in girls affected by hemophilia.

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