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Clinical resources on women and girls' bleeding and clotting disorders

An ISTH Pulse Podcast episode with pediatric hematologist Angela Weyand on raising awareness of bleeding disorders in women and girls and using social media as the "Shematologist" to share accurate, accessible health information.

An overview of current research projects led by the ISTH Scientific and Standardization Committee Subcommittee on Women's Health, with links to active studies on bleeding, thrombosis and hemostasis across every stage of a woman's life.

A set of Spanish-language educational posters on bleeding and blood clots in women, designed to help patients and health care providers in Spanish-speaking communities recognize symptoms, understand risk and seek timely care.

An ISTH Pulse Podcast episode in which hematologist Beverley Hunt explains how venous thromboembolism risk affects women at different life stages and what patients and clinicians should know about prevention and early recognition.

An ISTH Pulse Podcast episode on The Lancet Haematology Commission on Global Female Health and Haematology, exploring how pregnancy, menopause and poverty shape access to bleeding and thrombosis care for women worldwide.

An ISTH Pulse Podcast episode exploring the overlooked experiences of women and girls with hemophilia, including delayed diagnosis, bleeding symptoms and the barriers they face in getting recognition and equitable care.

An ISTH Pulse Podcast episode with pediatric hematologist Angela Weyand on raising awareness of bleeding disorders in women and girls and using social media as the "Shematologist" to share accurate, accessible health information.

A Lancet infographic highlighting gaps in care for women with bleeding and clotting disorders and outlining practical steps to improve diagnosis, treatment and outcomes for women with blood diseases around the world.

A Lancet Haematology article outlining the key aspects of female reproductive health, from menstruation to pregnancy and menopause, that hematologists need to understand to deliver better care for women with blood disorders.

An ISTH Pulse Podcast episode examining whether GLP-1 receptor agonists, widely used for diabetes and weight loss, affect blood clot risk and what the current evidence means for patients and prescribers.

A BMJ nationwide nested case-control study examining the link between contemporary menopausal hormone therapy and thrombotic disease, comparing blood clot risk across hormone therapy types and routes of administration.

Spanish-language recommendations from Grupo CAHT on hemostasis in women, covering thrombophilia testing, anticoagulation in women of reproductive age and thrombosis risk associated with newer contraceptives.

A BMJ Medicine review of emerging approaches to the hemostatic management of postpartum hemorrhage, summarizing the latest evidence on treatments that reduce bleeding and improve outcomes for mothers after childbirth.

NHS England guidance for maternity services on reducing avoidable harm, including the maternal care bundle element on venous thromboembolism risk assessment and prevention during pregnancy and after birth.

A Thrombosis UK patient leaflet explaining how menopause and hormone replacement therapy can affect blood clot risk, with guidance on symptoms to watch for and steps women can take to lower their risk.

A survey from the ISTH SSC Subcommittee on Women's Health gathering clinician input on current practices for preventing blood clots in pregnancy and after delivery to help inform future research and guidance.

An online hub from Thrombosis UK with trusted information on blood clot risk during pregnancy and after birth, including warning signs, prevention and support for women and families.

A downloadable questionnaire from Thrombosis UK that helps women and clinicians assess venous thromboembolism risk in early pregnancy so prevention can be planned when it is needed.

NHS England guidance for maternity services on reducing avoidable harm, including the maternal care bundle element on venous thromboembolism risk assessment and prevention during pregnancy and after birth.

Accessible patient-facing guide covering genetic and factor level testing for haemophilia in females, including infographics, personal stories and answers to common questions.

Practical resource helping women with bleeding disorders navigate disclosure conversations with family, partners, employers and healthcare providers, including guidance on privacy rights.

A patient and provider education toolkit from Let's Talk Period designed to support conversations about bleeding disorders and abnormal uterine bleeding in clinical and community settings.

Patient-centered infographic on heavy menstrual bleeding in girls affected by hemophilia.

Hub page covering bleeding disorders in women and girls, including haemophilia, von Willebrand disease, genetic testing, symptoms, treatment and the HFA Female Factors project.

Accessible patient-facing guide covering genetic and factor level testing for haemophilia in females, including infographics, personal stories and answers to common questions.

Factsheet on HRT for women who have a risk or history of blood clots.

A Thrombosis Canada hub of evidence-based clinical guides supporting healthcare providers in the assessment and management of thrombotic conditions across a range of clinical settings.

A Thrombosis Canada clinical guide for healthcare providers on the assessment and management of thrombosis in pediatric patients.

A Thrombosis Canada clinical guide for healthcare providers on the assessment and management of thrombosis in pediatric patients.

A Thrombosis Canada clinical guide for healthcare providers on evaluating and managing heavy menstrual bleeding in patients receiving anticoagulation therapy, including assessment tools, hormonal and non-hormonal treatment options and follow-up recommendations.

A Thrombosis Canada clinical guide for healthcare providers on evaluating and managing heavy menstrual bleeding in patients receiving anticoagulation therapy, including assessment tools, hormonal and non-hormonal treatment options and follow-up recommendations.

A Thrombosis Canada patient information page on heavy menstrual bleeding while taking anticoagulants, covering why it occurs, how to manage it and when to seek care.

A Thrombosis Canada patient information page on heavy menstrual bleeding while taking anticoagulants, covering why it occurs, how to manage it and when to seek care.

A Thrombosis Canada library of patient resources on cancer-associated thrombosis, including videos, publications and information sheets covering blood clot risk, prevention and management for people living with cancer.

A Thrombosis Canada patient information sheet covering blood clot risk during pregnancy and the postpartum period, including signs and symptoms of DVT and PE, safe treatment options and guidance for delivery planning.

A Thrombosis Canada page offering patient support tools including a personalized VTE information summary to help patients better understand and manage their blood clot diagnosis.

A Thrombosis Canada collection of patient educational videos covering thrombosis topics including blood clot awareness, prevention and treatment.

A Thrombosis Canada patient guide covering key information about blood clots, symptoms, treatment and prevention.

Schistosomiasis is a neglected tropical disease causing severe, sex-specific health effects in women and girls, including female genital schistosomiasis and complications during pregnancy.

A clinical resource from the American Society of Hematology on establishing and operating specialized heavy menstrual bleeding clinics for adolescent patients.

A peer-reviewed JAMA Pediatrics article providing evidence-based guidance on diagnosing and managing heavy menstrual bleeding and underlying bleeding disorders in adolescent girls.

An American Academy of Pediatrics clinical report outlining how healthcare professionals can use menstrual cycle patterns as an indicator of overall health in girls and adolescents.

An official committee opinion from the ACOG with recommendations for screening and managing bleeding disorders in adolescents with heavy menstrual bleeding.

Patient-centered infographic on heavy menstrual bleeding in girls affected by hemophilia.

A patient and provider education toolkit from Let's Talk Period designed to support conversations about bleeding disorders and abnormal uterine bleeding in clinical and community settings.

A series of resources for providers to share with their patients to address heavy menstrual bleeding. Available in both English and Spanish.

A peer-reviewed article from Clinical and Applied Thrombosis/Hemostasis examining the current evidence and clinical recommendations for managing venous thromboembolism risk in women with breast and gynecological cancers.

The 2022 international clinical practice guidelines provide evidence-based recommendations for the treatment and prevention of cancer-associated thrombosis, including considerations for patients with COVID-19.

An American Society of Hematology resource examining the thrombotic risks associated with estrogen and progestin-based contraceptives and guidance for supporting informed contraceptive decision-making in women with bleeding and clotting disorders.

A peer-reviewed article from the International Journal of Molecular Sciences reviewing the mechanisms and evidence behind venous thromboembolism risk associated with combined oral contraceptive use in women.