Take action to close the gap in girls' and women's bleeding and clotting care
The consequences of unrecognized or undertreated bleeding and clotting disorders in women are serious and, in many cases, preventable.
Venous thromboembolism remains a leading cause of maternal mortality worldwide, while bleeding disorders such as von Willebrand disease, hemophilia and rare factor deficiencies are significantly underdiagnosed in women, despite causing heavy menstrual bleeding, prolonged postpartum hemorrhage and a measurably lower quality of life.
When patients understand their risk, when clinicians have access to current evidence, when researchers can collaborate across borders and when policymakers prioritize these conditions in health systems, outcomes improve.
Take action:
Resources for girls' and women’s
bleeding and clotting health
Resources to share with policy makers, healthcare professionals,
colleagues, friends and family.
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1 in 4 people worldwide will develop a blood clot in their lifetime, with risk increasing during pregnancy, postpartum and with hormonal therapies.
(WTD Campaign)
Postpartum hemorrhage accounts for approximately 25% of maternal deaths worldwide, making it one of the leading causes of preventable maternal mortality.
(WHO, UNICEF)
Heavy menstrual bleeding affects up to 30% of women globally, yet it is frequently underreported and undertreated.
(RPTH, global epidemiology studies)
Women's health presents one of the most urgent and actionable opportunities for global policy impact," said Donna DiMichele, N.D. "By prioritizing maternal and reproductive health, we are aligning the ISTH's scientific excellence with recognized global health priorities and ensuring that women's bleeding and clotting disorders receive the attention, research investment and care that they deserve.
Donna DiMichele, M.D.
Global Public Affairs Committee Co-Chair
FOR PATIENTS
Take control of your health:
Resources for girls and women living with bleeding and clotting disorders
Understanding your risk and knowing when to seek help can be lifesaving. ISTH has brought together a comprehensive collection of patient-focused resources, including World Thrombosis Day materials, ISTH patient education tools, guidance on when to seek medical care and connections to support organizations and advocacy groups. These resources are designed to help women navigate bleeding and clotting disorders with confidence at every stage of life.
For healthcare professionals
Tools to improve care for girls and women with bleeding and clotting disorders
Staying current on the latest evidence and clinical guidance is essential to delivering the best care for women with bleeding and clotting disorders.
The ISTH has compiled a comprehensive collection of professional resources, including clinical guidelines, ISTH Academy training and continuing medical education, peer consultation networks and journal club and case discussions to support healthcare professionals at every stage of practice.
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FOR RESEARCHERS
Resources for researchers advancing the science of bleeding and clotting disorders in girls and women
The tools, data and connections needed to move your research forward are here. Access the ISTH publications database, join active research registries and collaboratives, explore funding opportunities and engage with the ISTH specialty groups to connect with experts across the thrombosis and hemostasis community. Take the next step in advancing the science of bleeding and clotting disorders in women.
Explore ISTH resources
The ISTH provides comprehensive educational resources and research publications to advance clinical practice in thrombosis and hemostasis.
Access curated women's health content, continuing education through the ISTH Academy and peer-reviewed research from our flagship journals.
The ISTH Academy delivers continuing medical education through webinars, courses and expert content in thrombosis and hemostasis. Educational resources support healthcare professionals advancing clinical knowledge in bleeding and clotting disorders.
The Journal of Thrombosis and Haemostasis (JTH) publishes peer-reviewed research advancing diagnosis and treatment of bleeding and clotting. Original research, clinical investigations and guidelines shape global practice in thrombosis and hemostasis.
Research and Practice in Thrombosis and Haemostasis (RPTH) is an open-access journal publishing peer-reviewed advances in bleeding and clotting. Global researchers and clinicians access the latest evidence-based research in thrombosis and hemostasis care.
Find your path
