Resources from the World Federation of Hemophilia (WFH)
The World Federation of Hemophilia (WFH) is a non-profit organization dedicated to improving and sustaining care for people with inherited bleeding disorders around the world, including women and girls with bleeding disorders.
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At the WFH, national member organizations (NMOs) and health care professionals (HCPs) work together to provide care for people with inherited bleeding disorders. The organization partners with governments and hemophilia treatment centres to strengthen knowledge through training and equip providers with the tools they need to identify, support and treat people living with bleeding disorders in their communities, while promoting global advocacy and collaboration to advance women's health within the bleeding disorders community.
The WFH is founded on the following core values and organizational principles: patients first, collaboration, integrity, respect, solidarity and excellence.
Vision and mission
The vision of Treatment for All is for a world where all people with inherited bleeding disorders have access to care, regardless of their type of bleeding disorder, gender, or where they live.
The mission is to improve and sustain care for people with inherited bleeding disorders around the world.
WFH Women and Girls with Bleeding Disorders initiative
The WFH Women and Girls with Bleeding Disorders Initiative works to improve diagnosis and access to care for women and girls with bleeding disorders and increase their recognition within the broader bleeding disorders community, through capacity building, awareness raising and data collection.
Women and girls represent just 4.5% of people identified as having hemophilia, far below the expected 30%, and roughly one in five women with heavy menstrual bleeding has an underlying bleeding disorder. Yet under-diagnosis remains common, leaving women and girls with bleeding disorders undiagnosed, underserved and underrepresented in medical research.
WFH Resources:
Women and Girls with Bleeding Disorders
The WBDR is the only global registry collecting standardized clinical data on people with hemophilia (PWH) and people with von Willebrand disease (VWD). The WBDR provides a web-based data entry platform to a large network of participating hemophilia treatment centres (HTCs) to collect and manage their data.
